Angelman Syndrome and FAST

Date and Location

Golf and Sponsorships

to Hopeful Halos Foundation

Angelman Syndrome

"Angels" suffer many many impairments. Inability to speak, sleeplessness, epilepsy, relationship difficulties, hyperactivity, constipation, sensory needs, wandering. All because they are missing a single gene that encodes one protein in the brain. But scientists are making great breakthroughs and are growing ever-closer to therapies that will help our Angels produce that missing protein.  

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Despite the countless obstacles they face every day, Angels are the happiest and most joyful people you will ever meet. But without a significant breakthrough, they will require constant, lifelong care.   

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AS affects more than just Angels. It imposes a life-altering toll on their families. A lifetime without quality sleep, injuries from frustrated kids who cannot communicate, constant doctor and therapy appointments, and a never-ending cycle of grief. So a cure will have immeasurable impacts for AS families. 

All funds we raise will be donated to the Foundation for Angelman Syndrome Therapeutics (FAST). ​FAST is focused on supporting research to cure Angelman. And we are close. FAST is funding multiple laboratories pursuing a number of strategies to treat Angelman syndrome.  Potential avenues to a cure include stem cells, RNAs, anti-sense oligonucleotides, viral vectors, and more.   

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But advancing promising therapies is an expensive endeavor. Since AS is a rare disease, philanthropic support is our only hope to fund this research. Our Angelman Tribe is extremely grateful for your support. Every single dollar counts and is appreciated!

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Most people have never heard of AS. Help us raise awareness.

Spread the word!

Register

Whether you attend or not, ​

you can still help

fund the cure!

Thank you to our generous sponsors

Hole Sponsors

Walter Fancypants Lawless

The Lang Family

The Vidmar Family

Prize Sponsors

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We are so grateful for your support!