Angelman Syndrome and FAST

Date and Location

Golf and Sponsorships

to Hopeful Halos Foundation

Angelman Syndrome

"Angels" suffer many many impairments. Inability to speak, sleeplessness, epilepsy, hyperactivity, constipation, sensory needs, wandering. All because they are missing one gene that makes one protein in the brain.  But scientists are making great breakthroughs and are growing ever-close to therapies that will help our Angels produce that missing protein.  

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Despite the countless obstacles they face every day, Angels are the happiest and most joyful people you will ever meet. But without a breakthrough, they will require constant, lifelong care. 

All funds we raise will be donated to the Foundation for Angelman Syndrome Therapeutics (FAST). ​ FAST is focused on supporting research to cure Angelman. And we are close.  Several strategies are in development to treat Angelman syndrome. Your donation will help fund all of them.

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The closer we get to a cure, the more expensive the endeavor becomes. With AS being such a rare disease, philanthropic support is our only hope to advance the research and find a cure for our Angels. Our family and friends and FAST are extremely grateful for your support. Every single dollar counts and is appreciated!

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The more people who learn about AS, the more quickly we will find a cure.  Help us spread the word.

Register

Whether you attend or not, ​

you can still help

fund the cure!

Yes, I know we are all over the quarantine.  But fighting viruses

triggers seizures.  Next question.

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We realize this is a tough year and so we are all the more grateful for your support!