Hopeful Halos Foundation's
Charity Golf Tournament
July 15, 2021
We grow closer to a cure every year. Help these little ladies
"Angels" suffer many many impairments. Inability to speak, sleeplessness, epilepsy, relationship difficulties, hyperactivity, constipation, sensory needs, wandering. All because they are missing a single gene that encodes one protein in the brain. But scientists are making great breakthroughs and are growing ever-closer to therapies that will help our Angels produce that missing protein.
Despite the countless obstacles they face every day, Angels are the happiest and most joyful people you will ever meet. But without a significant breakthrough, they will require constant, lifelong care.
AS affects more than just Angels. It imposes a life-altering toll on their families. A lifetime without quality sleep, injuries from frustrated kids who cannot communicate, constant doctor and therapy appointments, and a never-ending cycle of grief. So a cure will have immeasurable impacts for AS families.
All funds we raise will be donated to the Foundation for Angelman Syndrome Therapeutics (FAST). FAST is focused on supporting research to cure Angelman. And we are close. FAST is funding multiple laboratories pursuing a number of strategies to treat Angelman syndrome. Potential avenues to a cure include stem cells, RNAs, anti-sense oligonucleotides, viral vectors, and more.
But advancing promising therapies is an expensive endeavor. Since AS is a rare disease, philanthropic support is our only hope to fund this research. Our Angelman Tribe is extremely grateful for your support. Every single dollar counts and is appreciated!