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Sixth Annual Charity Golf Tournament July 18, 2024

You don't have to be a golfer to join the fun.  Buy a dinner ticket and bid on the silent auction! (Golf packages include dinner)

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Living with Angelman Syndrome
 

Watch a video following three families with children who have Angelman Syndrome 

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All funds we raise will be donated to the Foundation for Angelman Syndrome Therapeutics (FAST). ​FAST is focused on supporting research to cure Angelman. FAST is funding multiple leading laboratories pursuing a number of strategies to treat Angelman syndrome.  Potential avenues to a cure include stem cells, RNAs, anti-sense oligonucleotides, viral vectors, and more.   

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But advancing promising therapies is an expensive endeavor. Since AS is a rare disease, philanthropic support is our only hope to fund this research. Our Angelman community is extremely grateful for your support. Every single dollar counts and is appreciated!

About

Angelman Syndrome

"Angels" suffer many many impairments. Inability to speak, sleeplessness, epilepsy, relationship difficulties, hyperactivity, constipation, sensory needs, and wandering. All because they are missing a single gene that encodes one protein in the brain. But, scientists are making great breakthroughs and are growing ever-closer to therapies that will help our Angels produce that missing protein.  

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Despite the countless obstacles they face every day, Angels can be the happiest and most joyful people you will ever meet. They can also be an endless handful, and without a significant breakthrough, will require constant, lifelong care.   

AS affects more than just Angels. It imposes a life-altering toll on their families. A lifetime without quality sleep, injuries from frustrated kids who cannot communicate, constant doctor and therapy appointments, and a never-ending cycle of grief. A cure will have immeasurable impacts for AS families. 

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We are supporting leading institutions performing groundbreaking research

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Help us raise AS awareness.

Spread the word!

Register

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Whether you attend or not, you can still help fund the cure!

 

Thank you to our generous sponsors

Premium Sponsors

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The Loftus Family

The Read Family

The MacPherson Family

Cart Sponsor

The Lawless-Randolph Family

Hole Sponsors

Prize Sponsors

Questions about sponsorship opportunities? Silent auction contributions? Want to help?

Contact Us

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© 2024 by Hopeful Halos Foundation

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