SAVE THE DATE
Charity Golf Tournament
July 17, 2020
Louis is an amazing little boy with a very rare disease called Angelman Syndrome (AS). Individuals with AS—or Angels—have severe developmental delays. They are generally non-verbal, have difficulty walking, and have impaired gross and fine motor skills. Most Angels also suffer from seizures and have irregular sleep patterns. AS is not a degenerative disease, but barring a medical breakthrough, Angels require constant and lifelong care.
Despite his genetic setback, Louis is a blessing to everyone he has ever met. He is an endless ball of energy and happiness, and he spreads that joy to his entire league of fans. He manages to constantly joke and turn everything into a game. He is not alone. With their joyful disposition, Angels bring light into the lives of everyone they meet (at least during those times where they aren't pulling your hair, stealing your iPad, or crawling on top of you in their drive to satisfy their relentless desire for sensory input).
To support Louis and his fellow Angels, we have formed the Hopeful Halos Foundation, and are hosting the second annual Links for Louie charity golf tournament. Once again, all funds we raise will be donated to the Foundation for Angelman Syndrome Therapeutics (FAST).
FAST is focused on supporting research to cure Angelman. And FAST is remarkably close. We know exactly what causes AS and FAST researches have already cured it in the laboratory. Today, several strategies are in development to treat Angelman syndrome. Your donation will help fund all of them.
The closer we get to a cure, the more expensive the endeavor becomes. With AS being such a rare disease, philanthropic support is our only hope to advance the research and find a cure for our Angels. Our family and friends and FAST are extremely grateful for your support. Every single dollar counts and is appreciated!